WHO WE ARE
The Next Step Group is a community of families and caregivers of adults with Intellectual/Developmental Disabilities (IDD).
The mission of the Next Step Group is to gather a community of people who are dedicated to helping each other prepare our adult children with an intellectual/developmental disability live the highest functioning, most independent life they chose in the Triangle and surrounding counties of North Carolina.
Nothing About Us, Without Us
Due to the recent court case, Samantha R., et al. v. North Carolina, et. al, and it being an election year, Next Step has begun an Advocacy Project.
(From the Disability Rights NC website) – “The case, Samantha R., et al. v. North Carolina, et. al, was filed in Wake County in May 2017. The suit claimed that North Carolina does not offer enough community-based supports for people with I/DD. Many people with I/DD would prefer to live in their home communities but have been placed into institutions in order to receive services……… The judicial order declares that the State and DHHS have violated a legal mandate – passed nearly 30 years ago – that people with disabilities may not be forced to live in institutional settings in order to get the services they need.”
NC has not served our loved ones with an Intellectual/Developmental Disability (IDD) who are on the Innovations Wait List formally called The List of Unmet Needs. This list is for people with disabilities who do not have the Medicaid Program called Innovations Waiver. This program waives some of the Medicaid rules so people with IDD can receive Home and Community Based Services they need to live outside an institution. Currently, about 12,500 people have the Innovations Waiver and 14,000 are on the List of Unmet Needs in NC.
NC provides 1/3 of the funding for the Innovations Waiver while the Federal government provides 2/3 of the funding. The past Democrat controlled legislature under-funded this program when it began, and the current Republican legislature has not provided the funding to keep up with the population growth. Both political parties are complicit in under-funding services for people with these disabilities.
We are asking the State of NC to fund a Family Support Waiver (FSW) that would meet the basic needs of people on The List of Unmet Needs. An example of an FSW would be the Indiana Model. A detailed explanation of this model can be found HERE.
We need your support on this project to let Legislators and the Governor know that a FSW would benefit virtually all of the people on the List of Unmet Needs and their families. Please take a moment to write your Legislators and the Governor to let them know how you feel about this critical issue. Ask your family, friends, and neighbors to join this project.
There is legislator contact information and sample letters under the Advocacy tab on this website.
Thank You, Dave