"This is such a good group and (it) gives us a wide network of both other parents and professionals." -AB
Twitter
Add Your Own Content
This slide down option (like the footer widget) can be enabled or disabled, you can set your font, link, and background colors independently of other sections, and you can configure it to be 1 to 4 columns. Add any widget you would like, shortcodes or even custom html!

Learn More
Helping Each Other Navigate the IDD World

Susan’s Story

(This story references the Next Step meeting on 1/17/2015 about Group Homes, A Parents Perspective)

I have a son who just turned 19 who is currently at an ICF group home in Fayetteville as of April 4, 2014. As a parent the hardest thing about having your kid in a group home is feeling guilty that you are unable to care for your kid at home.  So it was encouraging to hear from other parents on how their kid seemed to be more independent once they were in a group home.  My husband and I chose to have Matthew is a group home because Matthew does not talk, did not walk until he was 10, is not self feeding and is not toilet trained.  We were physically and emotionally exhausted to the point where were not able to handle it any more.  We did not have any family or friends to support us.  We did have the Innovations Waiver, which I would not have been able to work without it.  And my husband ended up losing his source of income due to trying to toilet train and trying to teach Matthew how to self feed.  However, Matthew started getting aggressive towards himself and others to the point where we called 911 twice last year.  Matthew is on respiradol, which has helped a lot, but the Matthew’s medicines still need to be tweaked.

Granted that the ICF group home in Fayetteville may not be the perfect group home, but we were in a desperate situation.  And we did look at 2 other homes, but those 2 homes did not accept Matthew.  


One thing that I did learn on Saturday was that there are really good homes and really bad homes, and I think Matthew is at a home that is in between.  The good thing about ICF homes are they are audited every year, so any deficiencies have to be fixed every year.  The bad thing about ICF homes is that you lose the innovation slot.  So basically if we decide to pull Matthew out of the group home for whatever reason, we would have to go back on the innovation waiver waiting list.  Or basically quit our jobs and go on welfare.

If you have any questions, please let me know.  Or if you have anyone else who has questions, please let me know.

Thanks for listening!


Susan


Contact us

We're not around right now. But you can send us an email and we'll get back to you, asap.

Questions, issues or concerns? I'd love to help you!

Click ENTER to chat