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Helping Each Other Navigate the IDD World

Glossary

North Carolina Department Health and Human Services has a very good glossary of terms. Click Here to access their glossary.

FASDFetal Alcohol Spectrum Disorder refers to the range of adverse outcomes caused by alcohol use during pregnancy. Alcohol use during pregnancy is the leading known preventable cause of intellectual disabilities and birth defects in the United States; with approximately 40,000 babies born each year with this lifelong disorder. During the webinar, participants will learn how alcohol exposure during pregnancy can affect the developing brain and how FASDs may present in individuals across the lifespan.

In a recent study, 80.13 % of adoptive and foster children with FASD were misdiagnosed.  The most common diagnosis was ADHD. (Pediatrics, February 2015, Vol. 15 No. 2)

95% of people with FAS also have a mental illness.

55% of people with FASD will be confined to a prison, psychiatric facility or alcohol treatment facility

 

INTELLECTUAL/DEVELOPMENTAL DISABILITY                               

A severe, chronic disability of a person which:
1.  is attributable to a mental or physical impairment or combination of mental and physical impairments;
2.  is manifested before the person attains age 22, unless the disability is caused by a traumatic head injury and is manifested after age 22;
3. is likely to continue indefinitely;
4. results in substantial functional limitations in three of more of the following areas of major life activity; self-care, receptive and expressive language, capacity for independent living, learning, mobility, self-direction and economic self-sufficiency; and
5. reflects the person’s need for a combination and sequence of special interdisciplinary, or generic care, treatment, or other services which are of lifelong or extended duration and are individually planned and coordinated.

The most common syndromes associated with intellectual disabilities are autism, Down syndrome, Fragile X syndrome and Fetal Alcohol Spectrum Disorder (FASD). Sometimes intellectual disability is also referred to as developmental disability which is a broader term that includes ASD (autism spectrum disorders), epilepsy, cerebral palsy, developmental delay, fetal alcohol syndrome (or FASD) and other disorders that occur during the developmental period (birth to age 18).

NC-SNAP – North Carolina Support Needs Assessment Profile
Murdoch Center coordinates the statewide implementation of the NC-SNAP.  Also known outside North Carolina as the Developmental Disabilities Support Needs Assessment Profile (DD-SNAP), this is an assessment tool that can be used system-wide to consistently and reliably assess a person’s level of intensity of need for supports and services.  It was developed in response to a systematic need identified by the North Carolina Developmental Disabilities Policy Workgroup.  The NC-SNAP is the result of three years and countless hours of work by numerous individuals involved in the North Carolina DD service system.  The NC-SNAP is currently used in North Carolina and several other states. More information can be obtained by calling the NC-SNAP Coordinator at Murdoch Center, (919) 575-1070.


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